Emanuel Zayas, 14, had surgery in Miami to treat the benign tumor, but he later developed kidney and lung complications.
Emanuel Zayas was born with a rare disorder called polyostotic fibrous dysplasia, a condition that replaces multiple areas of bones with fibrous tissue and may cause fractures and deformity of the legs, arms and skull.
The tumor had been growing since he was 11, when what he thought was a pimple on his nose was actually skull bone growing from his upper jaw. "If nothing is done it will cause a fracture of his neck or it will suffocate him from breathing, just by its physical size".
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Dr. Robert Marx, head of maxillofacial surgery at the University of Miami Health System and the main doctor assigned to Zayas' case, told NBC Miami the boy's family donated his remains to science.
What is Polyostotic fibrous dysplasia? Said Marx in a statement: "After visiting Emanuel last night and observing a ray of hope from his pupillary reflexes and the muscle tone of his face, I was informed this morning that his condition had turned grave".
But on Friday, Marx announced on his Facebook page that despite early glimmers of hope, Zayas did not survive long after the surgery was completed.
"Our hopes of saving his life and in doing so would allow him a better quality of life have not been realised".
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The mass pushed on the teenager's trachea, which specialists dreaded my prompt suffocation in time. He also suffered from malnourishment because it made it hard to eat and swallow.
"It's life-threatening by its very weight", Marx explained to reporters.
Zayas and his folks, Noel Zayas and Melvis Vizaino, traveled to Miami on November 27 on a compassionate visa subsequent to meeting teachers from the helpful philanthropic Reel Life International in their nation of origin, the Miami Herald detailed.
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